NOT ENOUGH IS BEING DONE TO UNDERSTAND TSW.
YOU CAN HELP CHANGE THIS!
Your story can
HELP US DECODE TSW
TSW has been known about since the 1970s – yet almost no research has been done to understand this devastating condition.
That's why ITSAN has teamed up with the National Organization for Rare Disorders (NORD) to create the world's first medical database on TSW.
But it only works if we all get involved.
You hold
THE CLUES
By sharing your experience, you are helping to build a bank of clear evidence, proving the harm topical steroids can do.
If you’ve ever felt misunderstood, dismissed, or left alone to cope — this is your chance to do something about it.
At last, our voice will be heard.
You deserve
REAL ANSWERS
It’s only by coming together that we can begin to understand the patterns and uncover the mechanisms behind TSW. Without this knowledge, the reality of this condition will remain hidden behind misunderstanding and misdiagnosis.
This truly is a global effort – it takes every one of us to make it work.
That's why your experience truly matters.
Help us to:
- Understand how many people are suffering globally
- Learn why TSW happens and how it progresses
- Track symptoms, treatments, and quality of life
- Support the design of future clinical trials and treatments
Understand how many people are suffering globallyWithout your help...
NOTHING CHANGES
We have been harmed – but we are not powerless.
Together, we can change the way TSW is perceived, treated, and prevented. Let's turn invisible suffering into conclusive proof.
Every single report matters.